COVID-19 related studies and tools in Germany
OverviewThis project bundles information about COVID-19 related studies and tools in Germany. It intends to provide an information hub for the different initiatives, their aims, their processes, standards and study protocols, as well as their available data and metadata. It is initiated by the German National Research Data Infrastructure for Personal Health Data (nfdi4health), a consortium that plans to establish a concept for a federated research data infrastructure for personal health data in Germany.
Main objectives of NFDI4Health are: (1) the implementation of a federated health data infrastructure in Germany for searching and accessing health care data and health databases, (2) to enhance data sharing and data linkage of personal health data in compliance with privacy regulations and ethics principles, (3) to enable the development and deployment of new consent management mechanisms and augmented data access services, and (4) to foster data sharing and cooperation between clinical research, epidemiological and public health communities.
Further information sites on COVID-19:
Programme: nfdi4health - German National Research Data Infrastructure for Personal Health Data
SEEK ID: https://fairdomhub.org/projects/191
Public web page: https://www.nfdi4health.de/index.php/de/task-force-covid-19/
Organisms: Homo sapiens, Severe acute respiratory syndrome coronavirus 2
FAIRDOM PALs: No PALs for this Project
Project created: 2nd Apr 2020
Related items
Projects: WG Infrastructure for Translational Research, GMDS Project Group "FAIRe Dateninfrastrukturen für die Biomedizinische Informatik", FAIRDOM user meeting, COVID-19 related studies and tools in Germany, nfdi4health - German National Research Data Infrastructure for Personal Health Data
Institutions: University Medical Center Göttingen
Projects: FAIRDOM, Early Metabolic Injury (LiSyM-EMI - Pillar I), Chronic Liver Disease Progression (LiSyM-DP - Pillar II), Regeneration and Repair in Acute-on-Chronic Liver Failure (LiSyM-ACLF - Pillar III), LiSyM Core Infrastructure and Management (LiSyM-PD), Liver Function Diagnostics (LiSyM-LiFuDi - Pillar IV), Model Guided Pharmacotherapy In Chronic Liver Disease (LiSyM-MGP), Multi-Scale Models for Personalized Liver Function Tests (LiSyM-MM-PLF), The Hedgehog Signalling Pathway (LiSyM-JGMMS), Molecular Steatosis - Imaging & Modeling (LiSyM-MSIM), Kinetics on the move - Workshop 2016, Example use cases, FAIRDOM user meeting, MS_DILI, COMBINE Multicellular Modelling, FAIRDOM & LiSyM & de.NBI Data Structuring Training, EnzymeML, GMDS Project Group "FAIRe Dateninfrastrukturen für die Biomedizinische Informatik", FAIRDOM Community Workers, COVID-19 Disease Map, COVID-19 related studies and tools in Germany, nfdi4health - German National Research Data Infrastructure for Personal Health Data, ModeleXchange initiative
Institutions: Heidelberg Institute for Theoretical Studies (HITS gGmbH)
https://orcid.org/0000-0002-8683-7084
Data management and standardization expert for systems biology and systems medicine, responsible for the data management user requirements and user contacts within the German LiSyM network (Liver Systems Medicine: http://lisym.org/) and associated to the FAIRDOM team. Involved in different standardization initiatives and committees, i.e. COMBINE (http://co.mbine.org), ISO/TC 276 Biotechnology (https://www.iso.org/committee/4514241.html), European COST action CHARME (http://www.cost-charme.eu) and ...
Projects: FAIRDOM, GMDS Project Group "FAIRe Dateninfrastrukturen für die Biomedizinische Informatik", COVID-19 Disease Map, COVID-19 related studies and tools in Germany, nfdi4health - German National Research Data Infrastructure for Personal Health Data, LiSyM Core Infrastructure and Management (LiSyM-PD), ModeleXchange initiative
Institutions: Heidelberg Institute for Theoretical Studies (HITS gGmbH)
https://orcid.org/0000-0002-8318-3222
Projects: GMDS Project Group "FAIRe Dateninfrastrukturen für die Biomedizinische Informatik", COVID-19 related studies and tools in Germany, nfdi4health - German National Research Data Infrastructure for Personal Health Data
Institutions: University Medical Center Göttingen
https://orcid.org/0000-0002-9895-2469
nfdi4health aims to create the most comprehensive inventory of German epidemiological, public health and clinical trial data to date. It builds a centralised data catalogue with elaborate search functionalities, sophisticated data access management, and a data analysis toolbox, while respecting stringent requirements for privacy concerning personal health data. Standardisation services ensure a high degree of interoperability. Use cases covering prototypical study types and areas of research show ...
Projects: COVID-19 related studies and tools in Germany, nfdi4health - German National Research Data Infrastructure for Personal Health Data
Web page: https://www.nfdi4health.de
Country: 
Germany
City: Berlin
Web page: https://www.bihealth.org/en/research/core-facilities/interoperability/
Consortium website: https://covidclinical.net/
Slack: https://c19i2b2.slack.com/ Owner: Nils Gehlenborg (nils@hms.harvard.edu)
i2b2 tranSMART Foundation Call to Action: https://transmartfoundation.org/covid-19-call-to-action/
Submitter: Harald Kusch
Studies: General Information, Phase 1, Phase 1.1, Phase 2
Assays: Chats, Instructions, Websites
Submitter: Matthias Löbe
Studies: Entwicklung eines Tests zum Nachweis der Immunantwort bei Covid-19 (CoV2...
Assays: No Assays
Die Charité – Universitätsmedizin Berlin betreibt gemeinsam mit dem Berlin Institute of Health Clinical Study Center (BIH-CSC) eine zentrale Registerstudie ("Pa-COVID-19") und Phänotypisierungs- plattform für alle an der Charité behandelten Patienten mit COVID-19. Pa-COVID-19 dient der harmonisierten und standardisierten klinischen und molekularen Phänotypisierung von COVID-19 Patienten. Übergeordnetes Ziel ist die schnelle und umfassende Charakterisierung von COVID-19 zur Identifikation von ...
Collection of cross-links to other sites that gather COVID-19 information
Submitter: Harald Kusch
Studies: University Medical Center Göttingen, ZB MED – Informationszentrum Lebenswissenschaften
Assays: COVI-19 Übersicht
Submitter: Theresa Bender
Investigation: Consortium for Clinical Characterization of COV...
Assays: No Assays
Submitter: Theresa Bender
Investigation: Consortium for Clinical Characterization of COV...
Assays: No Assays
Submitter: Theresa Bender
Investigation: Consortium for Clinical Characterization of COV...
Assays: Instructions
Eine diagnostische Studie der Stufe 1 zur Entwicklung des SARS-CoV-2-ELISA. Ziel der Studie ist die Bestimmung von Sensitivität und Spezifität des Tests bei Probanden mit bekannter Erkrankung und bei Kontrollpersonen.
https://www.drks.de/drks_web/navigate.do?navigationId=trial.HTML&TRIAL_ID=DRKS00021166
Submitter: Ulrich Sax
Investigation: Lean European Open Survey on SARS-CoV-2 Infecte...
Assays: No Assays
Submitter: Ulrich Sax
Investigation: Lean European Open Survey on SARS-CoV-2 Infecte...
Assays: No Assays
Submitter: Theresa Bender
Investigation: Consortium for Clinical Characterization of COV...
Submitter: Harald Kusch
Investigation: Further information collections on COVID-19
Assays: COVI-19 Übersicht
Submitter: Harald Kusch
Investigation: Further information collections on COVID-19
Assays: No Assays
Submitter: Harald Kusch
Assay type: Experimental Assay Type
Technology type: Technology Type
Investigation: Further information collections on COVID-19
Submitter: Theresa Bender
Assay type: Experimental Assay Type
Technology type: Technology Type
Investigation: Consortium for Clinical Characterization of COV...
Study: General Information
Submitter: Theresa Bender
Assay type: Experimental Assay Type
Technology type: Technology Type
Investigation: Consortium for Clinical Characterization of COV...
Study: General Information
Submitter: Theresa Bender
Assay type: Experimental Assay Type
Technology type: Technology Type
Investigation: Consortium for Clinical Characterization of COV...
Study: Phase 1
Submitter: Matthias Löbe
Assay type: Experimental Assay Type
Technology type: Clinical Document
Investigation: Lean European Open Survey on SARS-CoV-2 Infecte...
Study: LEOSS
The NFDI4Health Task Force COVID-19 Metadata Schema (MDS) Mapping to FHIR contains a list of properties describing a resource (study, questionnaire or document) being registered in the Central Search Hub of the NFDI4Health Task Force COVID-19 and their mapping to FHIR.
Creators: Sophie Klopfenstein, Aliaksandra Shutsko, Moritz Lehne, Matthias Löbe, Carsten Oliver Schmidt, Carina Vorisek, Julian Sass, Sylvia Thun
Submitter: Sophie Klopfenstein
DownloadFirst selection of LOINC Codes for data extraction
Creators: Theresa Bender, Christian Bauer
Submitter: Theresa Bender
Instructions and database scripts for extracting COVID-19 related data from i2b2
Creators: Theresa Bender, Christian Bauer
Submitter: Theresa Bender
Owner: Nils Gehlenborg (nils@hms.harvard.edu)
Creators: Theresa Bender, Christian Bauer
Submitter: Theresa Bender
Crosslinl (URL) to Gitlab info site on COVID-19 (University Medical Center Göttingen, Department of Medical Informatics)
Creators: Harald Kusch, Theresa Bender, Christian Bauer
Submitter: Harald Kusch
Abstract (Expand)
Authors: Julian Sass, Alexander Bartschke, Moritz Lehne, Andrea Essenwanger, Eugenia Rinaldi, Stefanie Rudolph, Kai Uwe Heitmann, Joerg Janne Vehreschild, Christof von Kalle, Sylvia Thun
Date Published: 29th Jul 2020
Publication Type: Journal
Abstract
Authors: Zichen Wang, Amanda B Zheutlin, Yu-Han Kao, Kristin L Ayers, Susan J Gross, Patricia Kovatch, Sharon Nirenberg, Alexander W Charney, Girish N Nadkarni, Paul F O'Reilly, Allan C Just, Carol R Horowitz, Glenn Martin, Andrea D Branch, Benjamin S Glicksberg, Dennis S Charney, David L Reich, William K Oh, Eric E Schadt, Rong Chen, Li Li
Date Published: 4th May 2020
Publication Type: Misc
Abstract (Expand)
Authors: G. Wichmann, M. Rosolowski, K. Krohn, M. Kreuz, A. Boehm, A. Reiche, U. Scharrer, D. Halama, J. Bertolini, U. Bauer, D. Holzinger, M. Pawlita, J. Hess, C. Engel, D. Hasenclever, M. Scholz, P. Ahnert, H. Kirsten, A. Hemprich, C. Wittekind, O. Herbarth, F. Horn, A. Dietz, M. Loeffler
Date Published: 15th Dec 2015
Publication Type: Journal
Creator: Martin Golebiewski
Submitter: Martin Golebiewski
The Research Data Alliance (RDA) is a volunteer community of over 10,500 professionals from 145 countries across the globe. In less than two months, the community responded to an urgent call for action and defined much needed, comprehensive recommendations and guidelines for data sharing under the present COVID-19 circumstances.
Creators: Martin Golebiewski, see full list of members of the RDA COVID-19 working group: https://www.rd-alliance.org/node/68704/members
Submitter: Martin Golebiewski
This is the fifth and final draft of the Recommendations and Guidelines from the RDA COVID-19 working group, and is open for public comment until 8th of June 2020. Following the open period, feedback will be considered and then the WG will seek endorsement of the document from the RDA governance bodies prior to final publication.
Creators: Martin Golebiewski, see full list of members of the RDA COVID-19 working group: https://www.rd-alliance.org/node/68704/members
Submitter: Martin Golebiewski
Draft guidelines and recommendations; fourth release, 15 May 2020, version for public review
Creator: see full list of members of the RDA COVID-19 working group: https://www.rd-alliance.org/node/68704/members
Submitter: Martin Golebiewski
Creator: Matthias Löbe
Submitter: Matthias Löbe
Creator: Matthias Löbe
Submitter: Matthias Löbe
